But Words Can Never Hurt Me

Think of the times we make or hear comments without any filter.  You could be listening to a shock jock, watching a funny but irreverent movie or engaging in a candid conversation between friends or family.  It’s all good, you say.  And it’s merely for entertainment.  I totally agree.  I don’t like the idea of censorship or people who hide behind a politically correct curtain of words.  But when it comes to the words directly expressed by a teacher and her aides at a Cherry Hill, NJ, elementary school class of autistic kids, I find it just utterly inappropriate and downright disturbing.

What could make a supposed education professional and her assistants carelessly discuss drinking exploits and marital problems in front of students and allow and use derogatory comments against them?  It’s hard to believe someone who “knows better” could take leave of her senses and let this happen.  Was she still under the influence or did they just not think the students would notice or care? [Read more...]

An Open Letter To My Son…

An open letter to my son,

Hi handsome.  I’m not quite sure when you will read this, but there is so much I want to teach you, sometimes I get scared that I’ll forget some things or leave something out.  So I decided to make a short list of some life lessons I want to teach you.  They are in no particular order, but if you use them as a guide when life gets challenging, I think you’ll find your way:

1)  You have Autism.  That means you are special.  You have been given an amazing gift to see the world differently than other people.

2)  I spent a little while feeling sorry for you… for me… for us.  I was wrong for that.  You have made me a better person and you are absolutely perfect exactly how you are.

3)  But that doesn’t mean you don’t face challenges.  The world is not always as patient and understanding as we would like.  I’ll do my best to change the world for you, but in the mean time you will have to learn to cope in this wacky world.

4)  I will not allow you to use “Autism” as an excuse or a crutch.  You are capable of anything.

5)  Be open-minded.  Learn to compromise.

6)  But stand for something.  Defend it ferociously.

7)  Respect women.  They are a more perfect creature than we are.

8)  If you hurt someone… apologize (and mean it)

9)  If someone hurts you… forgive (and mean it)

10)  If you have to choose between popularity and loyalty… choose loyalty.

11)  Trust… but only after they earn it.

12)  Find something you love to do… get really good at it… and then convince somebody to pay you to do it.

13)  One good friend beats 10,000 so-so friends.

14)  Learn the difference ^^^^^

15)  Be humble.  Just when you think you have it all figured out, Life will teach you how wrong you are.

16)  Talk to God.

17)  Learn baseball.  It is the perfect game.

18)  Your Dad is just a man trying to figure it all out… just like you.

19)  Your Dad will have your back… always.

20)  You are your Dad’s hero.

 

Jerry is a Jersey Dad and also blogs at http://baconandjuiceboxes.blogspot.com.  You can also follow him on Twitter @JTurning and on Facebook: http://www.facebook.com/pages/Bacon-and-Juice-Boxes/320474061331829

This is an original post to JerseyMomsBlog.

Dear Nice Mom At the Park…

Dear nice mom at the park,

We really aren’t crazy!  And we really aren’t stalkers, we promise!  Forgive our excitement and over-zealous requests for your email address.  You see, we noticed a connection between our children.  You probably didn’t even pick up on it.  It was short-lived and consisted of little more than a few quick chases around the monkey bars.  But it was the closest our son has come to showing true interest in a peer.

To us it represents just a spark… just a glimmer of something we have been praying and working for since our son was diagnosed with Autism four long years ago.  True friendship has eluded him so far in his young life, and we want that so badly for him.

It hurts us to our core to see kids approach our son playfully only to be ignored as he entertains himself in his own little world.  But it hurts worse to see those kids give up and stop approaching him because they receive no reciprocation.

For some reason your child didn’t give up.  For some reason your child hung around.  For some reason your child made a connection with him.  That makes your child our new hero.

 

Jerry is a Jersey Dad and also blogs at http://baconandjuiceboxes.blogspot.com.  You can also follow him on Twitter @JTurning and on Facebook: http://www.facebook.com/pages/Bacon-and-Juice-Boxes/320474061331829

This is an original post to JerseyMomsBlog.

One Text Message…

“Eric found a friend in the jungle gym and they are playing together.  Eric won’t let him out of his sight.. Grandma is crying.”

One text message… 24 words… a few tiny bits of data. If you are a parent of a neurotypical child you give it passing acknowledgment as cute at best.  Let me tell you what it means to me:

The Subject:  Eric is my 7 year-old son.  He has Autism.  Expressive language is a major challenge for him.  He has never had a friend, a play date or a sleep over.  He has never shown interest in interacting with his peers.  He is in a Special Needs class of 5 children.  It has been a 5 year battle for us to reach him, keep him engaged in our world and not withdrawn into himself.  He has made amazing progress, but I had started to secretly prepare myself for the possibility that he might never enjoy friendship.  If friendship is within reach… everything is attainable.

The Sender:  My 10 year-old daughter, Anna, using her Grandmother’s cell phone.  One of the real silver linings to our struggles with Eric’s Autism.  Her maturity, her compassion, her generosity, the depths of her love for her brother astonish and inspire me every single day.  She and Eric were taken to a new indoor amusement park by my Mom and Dad.  She brought her best friend, who also happens to be amazing with Eric.  The fact that she was sitting and watching Eric play on the jungle gym rather than playing on her own with her friend is not lost on me.  It brings tears to my eyes.

The Footnote:  “Grandma is crying”.  My Mom and Dad are, without question, the most loving, giving people I have ever known.  They have been by our side or right behind us (sometimes leading us) through our journey with Eric from the beginning.  There are days their optimism and love is all that keeps me moving forward.

The Messenger:  The text message wasn’t sent directly to me.  It was sent to my wife.  Let me introduce you to her.  Her name is Jo Ann.  The depth of her love for her children is awe-inspiring.  Her strength, courage and generosity are endless.   She is truly a perfect individual.  She is my everything.

The Friends:  When I received the text message from Jo Ann, I immediately posted it on Facebook.  Within an hour it received well over 60 “Likes” and dozens of beautiful comments from friends. Some I have known my entire life.  Some I have never met but have found a connection through our common struggles and triumphs with Autism.  I cherish each and every one.

One text message… 24 words.

 

This is an original post for Jersey Moms Blog. Jerry is a Jersey Dad whom we are so proud to share this space with.

Yes, that is my son…

Yes, that is my son:  the one in right field playing with the dandelions instead of watching the pitcher.

Yes, that’s my boy wearing his baseball glove on his head.

Yes, that’s my kid spinning in circles on second base instead of taking a lead.

No, he didn’t play Little League last year.  He just recently showed a passing interest in baseball so we thought, “Why not?”

Yes, he was issued a uniform like the other kids, but the material is itchy and he doesn’t like it.

No, I won’t tell him “that’s too bad,” and make him wear it.

No, I did not see your son’s last home run blast, although I’ve noticed he is a gifted athlete.  I’m genuinely happy that you take such pride in his accomplishments.  You are a great Dad.

No, I don’t know the score of the game, nor do I care (no offense).

Yes, I too was an accomplished Little League ball player.

Yes, I too dreamed the same for my son.

Yes, it sometimes makes me sad that those dreams are probably not in the cards for him.  But, at the end of the day does it really matter?

Yes, my son has Autism.

No, I wouldn’t trade him for the world.  He is, by far, my greatest living accomplishment.  He is my hero… and I mean that on so many levels far deeper than Little League.  There are so many things you and your son can learn from him.  We are going for ice cream after he game.  Care to join us?

 

This is an original post for Jersey Moms Blog. Jerry is a Jersey Dad and also blogs at BaconandJuiceBoxes.blogspot.com.  You can also follow him on Twitter @JTurning   and on Facebook/pages/Bacon-and-Juice-Boxes.

The Dreaded Notebook

3:15 P.M.  He will be home any minute.  He’ll come be-bopping off the bus and greet me with a prompted, “Hi Daddy”.  He’ll take off his coat and shoes and leave them in a pile by the front door.   Then he’ll strip off his pants and leave them on the kitchen floor.  He’ll ask for a juice box and curl up in his favorite soft chair to decompress from a long day.  I will ask him how his day was and he’ll reply with a prompted, “We had fun.” Whether it’s been a good day or a bad day, the routine is always the same.  To determine the truth I have to open his backpack.  In it rests an item that holds a borderline-unhealthy amount of control over my daily mood:  The *gasp* Parent/Teacher Communication Notebook! [Read more...]

The Day We Lost Him (the first time)

I was at work… get this… training with my K9 partner to track missing persons.  It was a seasonably warm spring day.  I was about a mile deep in the woods with my K9 partner, “Rudy,” hunting for my good friend who was serving as our “bad guy” for the day (yes, they pay me to play hide and seek).  On my portable radio I heard our police dispatcher send an officer to an address a few hundred yards from my house concerning a “found juvenile.”  You don’t hear that every day in our business, so I was naturally curious.  It did not occur to me…

My Mom, the most amazing Mom and Grandma on God’s green Earth, was babysitting Eric for the afternoon.  After spending the morning inside she asked him if he wanted to go for a walk.  He was not yet verbal, but expressed his excitement to go outside.  My Mom then ran upstairs for literally 15 seconds to retrieve a pair of socks for the little maniac.   She returned downstairs and he was gone. [Read more...]

Maybe…

Maybe she is a terrible mother.  Maybe that woman you see in the supermarket allowing her little brat to kick and scream and throw a temper tantrum is just clueless.  Maybe that kid is spoiled rotten and just needs a little discipline.  Maybe that mother should be court-ordered to sit down and watch Dr. Phil to pick up some parenting strategies.  Maybe she is out of her mind for relenting and giving that little tyrant the lollipop he is screaming for.  And what kind of parent lets their 7 year-old suck his thumb, anyway?  Or maybe… just maybe… there is more to the story.

Maybe that mom, with her hair all mussed and her food-stained sweats, is just like you.  Maybe she had dreams and visions of her child enjoying play dates, sitting down with her “mommy friends” enjoying a cup of tea while the kids played nicely in the next room.

Maybe that mom has seen all of the Dr. Phil parenting episodes and would give her left arm to be able to reason with her child and implement those positive parenting strategies she has read in the magazines.

Maybe her child has Autism. 

The blessing and curse of ASD individuals is they physically look no different than neurotypical people.  Those of us who are around it constantly can pick up subtle signs and are able to identify it rather easily.  But to the average person, they look just like everyone else.  Unfortunately, this fact breeds misunderstanding and, too often, judgment.

Autism parents still have to get the grocery shopping done.  We still have to pick up the dry cleaning.  We still have to go to the bank.  All the while we are deeply committed to teaching our kids the life skills they need to live as close to a “normal” life as possible.  Lessons in manners can only go so far in our home.  The experts tell us that we need to teach these lessons in the real world in order for our kids to generalize what we are teaching them.  Sometimes, to be blunt, those lessons go down the crapper.  Sometimes we have to cut our losses and give in to the restaurant tantrum and let them order ice cream for dinner just to survive the meal, pretend we are a regular family, and not have to leave before the appetizer arrives.

In this, my first post, I humbly make one simple request:  Maybe, instead of judging, ask that mom if she needs a hand carrying her groceries.  Maybe just offer a simple gesture of understanding… a smile… a sign that the whole world is not against her.  Maybe say nothing and just go about your day and offer a silent prayer for God to grant her the strength and inner peace to survive hers.

-For my wife.  I love you.

Jerry is a Jersey Dad and also blogs at BaconandJuiceBoxes.blogspot.com.  You can also follow him on Twitter @JTurning   and on Facebook/pages/Bacon-and-Juice-Boxes.

This is an original post for JerseyMomsBlog.

AWARENESS: Wishlist for Children’s Hospital of New Jersey!

While we don’t normally request donations from our community, this one was special. I recall a time that my youngest son was brought to the hospital with a high fever only to have to admit him for a blood infection and antibiotics treatment. He was an infant and we had the resources to keep him comfortable during his stay, a very short one in comparison to the experiences of many little patients at Children’s Hospital of New Jersey.

Please consider making a child’s experience in the hospital a better one.  Provide a day at the movies, help throw a special party, or supply hours of distraction with arts and craft supplies.  You can also help premature and ill babies develop and heal in safety and comfort by supplying special developmental items, swings and bouncy seats.

To see the full list of requested items that you may donate easily online, visit http://www.givetochildrennj.org.

Children’s Hospital of New Jersey helps nearly 50,000 children – from birth through age 19 – every year. And now you can help them out too. Supplies and toys are constantly in need for the children we care for at Children’s Hospital ofNew Jersey.

The wish list is comprised of a lot of the items our caregivers have told us are in short supply. These items include special developmental items that help premature babies feel like they are still in their mothers’ womb, sensory equipment to treat children with learning and behavioral challenges, and playthings to distract a hospitalized child from the tedium and fear that can accompany a trip to the hospital.

You can also connect with Children’s Hospital on Facebook and Twitter to help spread the word.

 

Meds That Mother Gives You…Worth It At All?

“E, eat your applesauce!” It’s a refrain I hear myself say every morning.  Sometimes, she eats it without assistance; other times, I stir through the sauce in search of the little white beads.  On top of adding inconvenient moments to the morning shuffle, I hate putting chemicals into her body.  But I have to because it helps her concentrate and reduces her impulses to a manageable level.  Currently, she’s taking Ritalin.  Even though it helps, it still makes me cringe and feel guilty.

A few years ago, my daughter E had trouble controlling herself.  She’d grab things without thinking, grow frustrated with work or anything else new and throw a desk or another object; and, sometimes, she couldn’t sit still even if I had belted her to a chair.  It wasn’t horrendous, but it sure didn’t lead to success in school or in daily life and caused me excessive worry.

When a parent puts a child on medication, it’s never a quick fix or a subject that hasn’t been fraught with anxiety, resentment and indecision.  You keep thinking about how you failed your child and also desperately hope the medicine will bring your child back to some state of normalcy.  At first, I resisted the choice when a trusted teacher and friend suggested considering the possibility and discussing it with E’s pediatrician.  I never allowed the kids soda…why would I feed E chemicals? [Read more...]