How I got my do-good groove back

My son’s going to be 8 next month. That’s eight years since the day Max was born, eight years since we found out he’d had a stroke at birth, eight years since doctors told us he might never walk or talk, eight years I’ve spent going to all sorts of specialists and doing all sorts of therapy for him.

It’s also eight years since I last did volunteer work.

My son, who has mild cerebral palsy, has been my charity project for eight years. Or so I’ve told myself. How could I find time to help anyone else when Max required so much attention? I had become a person who needed help, from the teen boys who came to visit my son through a volunteer program to the caregiver we got through the state.

Before I had kids, I did a fair amount of volunteer work. In college, I ran a toddler playgroup for a low-income housing community. In my twenties, I worked in the pediatric playroom of Sloan Kettering, a hospital that treats people for cancer. I’d do projects through New York Cares, and pitched in with a program that delivered meals to the elderly. Once, I spent Halloween at a home for kids with special needs.

Then I had my son. And I stopped volunteering and funneled every ounce of do-goodism into him. [Read more...]

Let's think about 9/11 today, too

I had The Today Show on that morning as I got dressed, and heard Katie Couric say something about a plane hitting one of the Twin Towers. “Wow, bad accident,” I thought, finished doing my hair and dashed out. I lived in Hoboken at the time, and usually took the bus to work. But the bus stop was crowded, and I decided to take the ferry across.

“Did you hear the plane hit the tower?” I asked the ticket seller.

“No,” she said, “but I heard the second one.”

Oh. That was the first moment I realized something was wrong. But I boarded the ferry anyway and headed to the top deck. There weren’t that many people onboard. As it chugged across the Hudson, the Towers came into view, smoke and flames were pouring out of both of them. I was so horrified, all I could do was gasp. But I had hope the firefighters could contain the flames. During those first few minutes, we all had hope. After all, it appeared that only the top part of the buildings had been affected, and I had faith in New York City’s firemen.

On the shuttle bus to my job, everyone who had a cell phone (they weren’t quite as prevalent back then) was on theirs. And that’s the first moment I heard the word “terrorism.” [Read more...]

Let's-Do-Stuff Sundays vs. Lazy Sundays

Yesterday we had one of those Super Kid Sundays—you know, the kind when you’ve planned approximately a gazillion activities centered around your little darlings. First we made the kids pancakes for breakfast…with M&M’s. Then we played miniature golf at Essex Golf in Roseland, a real gem of a place. It’s clean, pretty and not crazy-crowded; we were there at 11:30 a.m., we had the course to ourselves. There’s also a nice-size golfing range for adults sans kids, and a good pizza place, which is where we had lunch, followed by ice-cream.

Then friends came over with their three kids. Then we took them to Chuck E. Beyond Cheesy and let them all play games for an hour. Then the kids had pizza for dinner, too. With ice-cream. Then we finished the day at the park.

Our Sundays tend to fall into two categories: Plan a bunch of fun activities totally centered around the kids, or just “relax” at home with the kids. “Relax” is typically code for veg out on the couch and watch a lot of TV. The kind of Sundays our family has is largely contigent on me, given that I do approximately 99.8% of the planning, a recent survey shows. I don’t mind that much, especially because I’d likely keel over from a heart attack if my husband ever organized a day’s events. Seriously, he does a lot of other stuff for our kids, and so I’m fine with being Julie the Cruise Director of our relationship. [Read more...]

My Commute, My Sanity

It’s approximately 200 degrees outside and I’m standing on a concrete platform, mentally willing the train to come. It works; in the distance, I see it snaking toward our station. It rolls to a stop and, like the good sheep that we are, my fellow commuters and I pile on.

It’s a bilevel train and I inevitably head to the lower tier (I’m not sure what that says about me). Sometimes, I selfishly sit in the four-seater so I can spread out. Other times, I’ll grab a window seat and hope nobody sits next to me. A good, forceful timed cough can help keep away unwanted guests. That, or talking to yourself. [Read more...]

So, Why Do You Love the 'Burbs…Or Not?

I grew up in apartment buildings in Brooklyn, New York. My playground: a concrete backyard. I had a great childhood, but as soon as I was old enough to think about having kids, I knew I wanted to raise them in a suburb. I wanted them to have large grassy areas to roll around, big wide roads to ride their bikes on, and wild life to see other than cockroaches and city squirrels.

We got the house in the ‘burbs, a 1910 colonial with original parquet floors and a backyard filled with gorgeous shrubs and flowers (the previous owner was a diehard gardener). Heaven.

We have been happily living here for eight years now and love it, despite storms that have knocked out the power; invasions by wasps, yellow-jackets and carpenter ants; overly aggressive mosquitos; possum sightings (is there ANYTHING uglier than a possum?!); nosy neighbors; and a recent bunch of mysterious dead birds. [Read more...]

A Baby, A Stroke and the Good Doctors of New Jersey

“Your baby has had a stroke.” Those were the shocking and terrifying words a doctor said to me and my husband 7 years ago, as we sat in the NICU on a cold December day waiting to find out what had happened to our newborn. Max had started having seizures the day after he was born. An MRI revealed brain damage. Doctors realized he’d been deprived of oxygen and had suffered a stroke.

We hadn’t even known babies could have strokes.

The doctor, a founding father of the field of pediatric neurology, told us the worst: That Max might never talk or walk. That he might have mental retardation. That he was at risk for vision and hearing problems.

It was too much to comprehend.

This wasn’t happening to us.

Only it was.

[Read more...]