My daughter was born in December 2006. In August 2007 I was officially diagnosed with Multiple Sclerosis. Since she was a baby, she has come with me to all my neurologist visits (at least every 6 months), has come to various fundraising walks/bikes with my always growing team, and knows the days when Mommy is just not 100%. I pride myself on the fact that I take good care of myself. Of course my whole family is my driving force, but the emphasis on it is my daughter. Of course there are some off-days. For instance, on days when fatigue is hitting me hard, she tells me to lay down and rest. Once a month she’ll hang out with her uncle, aunt, grandma, etc, when I go to the hospital to get my infusion. When I get home she’ll see the bandage on my arm and ask me if my boo-boo is ok. (Side note: my “boo-boo” has always been ok. Never had any side effects from the medication.) I sometimes feel bad because she doesn’t totally know what’s going on with me, but on the other hand she doesn’t know any different.
Needless to say, I couldn’t have a better nurse. 🙂
Yesterday was the first day I gave a little more detail as to what’s going on with me. I was heading to my mom’s job with her where she was going to hang out while I went to get my routine brain MRI. She asked me, “Why are you going to the doctor? You’re not feeling good?” I told her I was feeling fine, that I was just getting a check up. Always the curious one, she asked what kind of check up, so I told her the doctor was going to take pictures of my brain. She got excited asking if she can get pictures taken of her brain! After laughing I told her she didn’t need to. In my head I prayed she never had to.
I know as she gets older, we will give her more details as to what’s going on with me. For now, I just love the days when she puts the blanket on me and tells me to rest…because I know the next day she’ll go back to running around like a bat-out-of-hell!
This is an original post for Jersey Moms Blog. Melissa can also be found at Melissa’s Madness.